Respiratory diseases registries in the national registry of rare diseases.

نویسندگان

  • Beatriz Lara Gallego
  • Ignacio Abaitua Borda
  • Genaro Galán Gil
  • Diego Castillo Villegas
  • Álvaro Casanova Espinosa
  • Esteban Cano Jiménez
  • Iñigo Ojanguren Arranz
  • Manuel Posada de la Paz
چکیده

This report describes the general characteristics, objectives and organizational aspects of the registries of rare respiratory diseases included in the National Registry of Rare Diseases of the Research Institute for Rare Diseases (ISCIII), in order to publicize their existence and encourage the participation of professionals. Information is collected on the following conditions: alpha-1 antitrypsin deficiency, idiopathic tracheal stenosis, adult pulmonary Langerhans' cell histiocytosis, lymphangioleiomyomatosis, alveolar proteinosis, and sarcoidosis.

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عنوان ژورنال:
  • Archivos de bronconeumologia

دوره 50 9  شماره 

صفحات  -

تاریخ انتشار 2014